Resources


United Mitochondrial Disease Foundation (UMDF)

  • 8085 Saltsburg Road
  • Suite 201
  • Pittsburgh, PA 15239
  • Phone: 1-888-317-8633; 1-412-793-8077
  • Fax: 412-793-6477
  • Email: [email protected]


Mitochondrial Disease Registry and Tissue Bank

  • Massachusetts General Hospital
  • 185 Cambridge Street
  • Simches Research Building 5-238
  • Boston, MA 02114
  • Phone: 617-726-5718
  • Fax: 617-724-9620
  • Email: [email protected]


The Champ Foundation

  • 4711 Hope Valley Road
  • 4F PMB 1171
  • Durham, NC 27707
  • Jeff Reynolds: 727-871-2667
  • Elizabeth Reynolds: 727-612-4606


Children’s Hospital of Philadelphia (CHOP)

  • 3401 Civic Center Blvd.
  • Philadelphia, PA 19104


Boston Children’s Hospital

  • 300 Longwood Ave.
  • Boston, MA 02115